This was taken last fall. Yep they basically are the cutest.
I seriously have some of the best stories. Twin life is nuts! I am going to try to blog once a week while getting infusions, so I am sure I will have tons of funny stories to tell you.
Now to the medical part. I have been diagnosed with Elher's Danlos Syndrome. It is a connective tissue disorder that causes all my symptoms. Yay for answers! However there is no cure, but we can find medications and treatments to help the symptoms. One of them being, getting saline infusions. For the last year and a half, I have been going to Johnson Memorial Hospital to get infusions once a week. I get 2 bags of fluids currently. For the last month, I have been trained to do them on my own! I am currently sitting in my room, drinking coffee, blogging (obviously), and getting infusions. It is definitely an answered prayer considering I still cannot drive. I take a ton of medications, but after a horrible year last year, I feel like we finally have a good medication regimen. Yay for more answers! I cannot thank God enough for my momma that has fought for answers since day one. Without her, I definitely would not be able to even function.
In other news, I got approved for a service dog! I am super excited for this. I am not sure exactly when I will get it considering it is a long process, but it is going to be an answered prayer. I don't like to show my struggles on a daily basis, but somedays are really hard. I cannot do anything without feeling light headed. I feel like all I can do is lay down somedays. Thank God for a wonderful family that helps me with my boys whenever I need it. My service dog will be almost like another set of hands. It can help me pick up stuff off the ground if I drop it. It will be able to go to the fridge to get me a water or gatorade when I am feeling bad. Most importantly, it can call for help if I was to pass out or have a seizure. My hope is that it will be able to sense both of those thing, so I can drive again. They cannot train a dog to be able to sense seizures, but many of them are so aware of what is going on, they are able to sense it. It sounds silly to say God is going to send me a dog, but I truly believe He will. He knows my needs, and I have no doubt He will provide it. I will definitely keep you updated on my service doggy. Oh yeah, a lot of people want to know what type of dog it will be. It will be either a lab, golden retriever, or a golden retriever/lab mix! My family is all super excited. Except for my great grandma, I am kind of curious on what she will think when I bring this dog everywhere. haha.
Back to life, sorry I am always scatter brained, so be prepared. In A little over 5 weeks, my family is going on a 7 day cruise. Our little fellas will be staying with grandparents while momma and daddy enjoy one last vacation without the kiddos. Although, I know I am going to miss them dearly, Daniel and I are so excited. The cruise is the reason I wanted to learn how to do my own infusions. They make me feel so much better, and I really wanted to be able to enjoy my trip. My mom has a suite with a balcony, so I won't mind sitting outside looking at the ocean while getting fluids. I may even order room service. haha. I am so excited.
After not feeling well for a year, I am finally trying to focus on myself. I joined Weight Watchers, because I absolutely hate the way I look. I have completely stopped caring for far too long. I am down 19 lbs! woohoo! I still have a long way to go, but I am so glad to be doing something for myself. It makes me a better momma. When momma's happy everyone's happy. :)
I will have so much more to tell you, I am sure, but for now, this is it. Thanks so much for reading. Next week, I am hoping to do a twin story blog. It should keep you laughing. I promise I won't constantly talk about my illness, I am not that kind of girl, but I do know many people have questions, so if you have any please let me know. I will answer them the best I can. Love you all.
If this isn't true, I don't know what is.
Sometimes, I do not know the purpose in my life, but I know God has big plans for me. I take the hardships as they come, and even if my life is raising children and being a wife, to me that is an extraordinary destiny. It is what many women long for, and I am blessed to have it. I may not be able to be a doctor, but I am Jackson and Branson's mommy and to me that is extraordinary.
There was a time in my life that my days were dark. It was really hard on me. I chose to trust in the Lord, because I felt like I had nothing else to lean on. I feel like He did both of those things. He comforted me as I fell, but He also taught me how to overcome it and become better than I ever thought I could be.
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